• 2 Posts
  • 45 Comments
Joined 1 year ago
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Cake day: August 15th, 2023

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  • Leraje@lemmy.blahaj.zoneOPtoSelfhosted@lemmy.worldSelf hosted image editor?
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    1 year ago

    I asked for help in a self-hosting community. How could my desired location be misunderstood by anyone with an IQ above 10?

    This little side -journey has been a complete waste of time. All I wanted was a recommendation or two relevant to things I needed which I clearly explained in my post. Instead I got told I was making no sense and should use third party solutions which is a remarkable thing to read in a self hosting community where I would assume most people realise others want y'know to self host.

    If people don't have relevant recommendations they could've just said that or even better, say nothing.








  • I never claimed autism wasn't a disability. The fact that autistic people are disabled in some ways isn't in question. But its neither just a disability or - like all disabilities - something that isn't disabling by virtue of the world its part of rather than its intrinsic nature.

    For example, you say an autistic person cannot experience social interaction in the same way as a non autistic person. True. But the non autistic person can, with very little adjustment, be aware of that. My kids have good relationships with NT friends and whilst they might not experience them in the same way as NT friendships, they still find them fulfilling.


  • I disagree, its not in my opinion a meaningless distinction at all. A difficulty in cognition might prevent a person from reading War And Peace. Thats a direct result of having a learning disability. Someone with a visual disability who cannot access audio books or braille versions of War And Peace is not being affected by their disability but by the fact an accessible version is not available.

    You might argue the end result is the same - an inability to read War And Peace - but the point is that for the person with a visual disability the situation is fixable if society is prepared to make the effort.

    In regards to your situation you've had terrible experiences but they are not down to the fact youre autistic, they're down to the fact your NT 'friends' weren't really friends at all. I'm sorry they let you down but I'm pretty sure I could find similar stories where nobody in the story was autistic.


  • I'm not naive (or arrogant) enough to think I know everything my kids are thinking and neither am I suggesting their lives are 100% perfect but all of them (on the spectrum or not) are all pretty forthright, confident adults. When they were teens they of course went through some shit related to their being autistic, but none of that was because they were autistic, it was down to how other people/situations made them feel because they were autistic. I'm as sure as any parent can ever be that I've never detected any kind of prolonged resentment or unhappiness at the fact of their autism.

    We never taught them that 'autism is a superpower' because it isn't. Sometimes it has advantages and sometimes there are disadvantages and describing someone elses life as superpowered puts an unrealistic expectation of happiness and accomplishment on them. By the same token, neither are their lives a ruin and my life as their parent most certainly wasn't ruined.


  • I'm not speaking for autistic people here, but I am speaking as parent to two children (now adults) on the spectrum.

    Autistic children do not ruin your life and do not have ruined lives themselves. As with all parenting, sometimes things are very, very difficult and sometimes things are very, very easy. This isn't unique to raising a neurodiverse child, this is just parenting. The unique challenges that parenting a neurodiverse child brings are 99% of the time caused by how society thinks these children/adults are and assumptions about whats best for them without actually asking them rather than any sort of intrinsic issue caused by their autism or ADHD or any other neurological difference. For the remaining 1% of the time, you just do your best.

    The narrative that neurological difference, in particular autism, ruins lives has, in its modern form, been with us since Andrew Wakefield first perpetuated his fraudulent claims of vaccine damage causing autism. It was spread by antivaxx/autism activist parent groups like Jenny McCarthy's Generation Rescue and the truly despicable people at Autism Speaks. These are the people who've ruined lives.



  • I have a Kobo Clara which I installed (free, open source) KOReader on. I also have Calibre installed on a desktop machine with the db for that located on my server (which is in my home, not a VPS). Having the db there means it can also serve the Calibre-web install which is also on the server.

    When I first set this up I used Calibre on my desktop to connect over wifi to my Kobo and pushed everything I had straight onto it in one go. Now, as I add new individual books to Calibre, I use the OPDS connection on my Kobo to connect to Calibre-web and pull the new book to my Kobo from there. This means I can access my collection wherever I am in the world.