Gentlethem
Heard from a friend who has an autism diagnosis that after getting it some health care people started treating them in a “custodial” way, as if they were simple or had problems understanding, doctors wouldn’t listen to them and so on. For example it might make it more difficult to get help with mental health issues because “it’s just the autism”. I told my psychiatrist that I’m aware of such and they kind of agreed that this can happen.
Nah, that’s just their jousting lance
This is what my psychiatrist kinda told me between the lines when I told them I suspect AuDHD. I would like to * know *, just to have an explanation to some things ADHD diagnosis alone doesn’t explain. But the autism diagnosis might cause more harm than good - as I don’t have severe problems related to those traits, so it would be unlikely to get any help but for example might encounter discrimination in health care etc…
Feels.
Also: Under-stimulated -> anxiety -> Have To Do Something, Anxiety Driving Me Nuts-> DO ALL THE THINGS -> stress!! -> stimulation burst because of stress -> overwork -> over-stimulated -> burnout -> depression -> under-stimulated
The neurospice flows strong in this one
You can definitely split the Elvanse capsule for a smaller dose, it’s safe and doesn’t affect the drug itself. Where I live Elvanse is so expensive it would make sense to try and get as high dose as possible and just split it to smaller doses to save money. The price is like 95-135€ for 30 capsules… Also a good-to-know that doctors don’t tell but should: 2 grams of vitamin C should get rid of most of the drug in your system in about an hour or so, take with plenty of water and prepare to piss a lot. For example if you have problems falling asleep or feel like it’s lasting too long you could try if vitamin C helps. Also if you accidentally take too much. I wonder why the doctors don’t often mention about this because taking vit-C supplements will lessen the effect of Elvanse.
And like the others said, it will take a while to get used to the drug. There’s also the “wow-factor” in the beginning that might make the effect of the drug feel stronger. But it’s a good idea to start with a smaller dose first. No need to force yourself and feel uncomfortable with too big a dose.
You are undead now, just like Jesus
Same here, used to happen when I’d have a big firght with my SO or parent who wouldn’t understand what’s going on and tried to push me into solving the situation rather than give space. But definitely difficulty speaking is an indicator of emotional distress/overwhelm for me and dissociation / freezing follows when the distress worsens. I find writing an easier way of communicating difficult emotions and thoughts and i’ve even thought about learning sign language to help with these situations.
Well I did self-medicate a bit while waiting for the actual diagnosis and I think that would be valuable information for the doctor as well, only if I could tell about it honestly. The meds can be used to validate the diagnosis after all. But it also gave me insight on what works and what doesn’t and how. Where I live one has to try 2 different meds (usually both are methylphenidate) before lisdexamphetamine and for me at least the mf’s cause quite awful side-effects (like dissociation) which elvanse doesn’t so at least now I know not to force myself to the bad ones and go through the process to get to the ones that actually do the trick.
Substance abuse is pretty common among ADHD people but you can’t get the diagnosis if you admit that or get caught in the screening (drug tests are also required here for the meds). Probably many drug users too have ADHD but they never got proper diagnosis and treatment and never will.
I hope this is not Finland like the name Sisu would suggest as it’s very much forbidden to make any live fires at the moment - wildfire warning is set for the whole country. People are ignoring the warnings and starting forests fires with careless campfires, cigarette butts and such. :(
That’s what a queer in a closet would say
You are not alone with those thoughts. My partner got diagnosed some months ago, and at first they were a bit doubtful of the whole thing, but as there are people in the family who also have ADHD recently diagnosed, they decided to get tested and the psychiatrist said it’s as clear as can be.
After the diagnosis everything kinda clicked into place and things suddenly made sense. My partner was afraid the meds would change their personality, and they have to some extent, but it’s all positive tbh now that the meds are correct. The person is the same, but the edges are not as sharp as before. It took a while to find the right meds and the ones they tried first caused quite a lot of mood swings etc. But for my partner the meds are life-changing. Same i’ve heard from the other family member who was first misdiagnosed and unsuccesfully treated for depression and bipolar disorder for several years.
But of course people are different and not all benefit from the meds. I just booked an appointment to a psychiatrist as I suspect being on the spectrum and that being partially reason for my mental health issues and other troubles. Mostly I’m looking for a reason, apart from me being a lousy human, for all of this and at this point I’d be relieved to hear that I’m not responsible of all the difficulties I experience.
There is a downside to the diagnosis though as doctors sometimes treat/face neurospicy people different than neurotypicals. But apart from that nobody needs to know about your diagnosis unless you want to share.
looks like the poor thing burned its lips too :(
Thank you so much for sharing! This is really relatable and interesting theory and provoked lots of thoughts, I read another article from the same author about grand emotions and it too was striking, super inspiring stuff and I feel more validated after reading these.
I actually began to doubt if the therapy I went to was “off” as the focus on emotional skills was on “non-autistic emotions” and that underlined the fact that I wasn’t at all good with those, but there wasn’t much recognition and support for emotions such as those mentioned in the grand emotions article.
Sumptuous dwelling! And portable!
Oh boi this is so relatable. It seems that I’ve been running on anxiety my whole life.
For me it seems to help that I find validation and reasons for those feelings (eg from videos explaining why ADHD or CPTSD causes such behaviors and thought patterns) and through that understanding internalize that there is always a reason for everything and no, the reason is not that I’m a shitty person.
Allowing myself to stim helps, I didn’t even realize how much I’ve been blocking it.
I think the most noticeable help from the meds is in social situations, but also the fact that I can always “play the AuDHD card” helps - given that the people are safe enough to reveal this diagnosis.
I process thoughts and feelings by doing physical things so evening walks are super important to clear some of the chaos inside my head.
My SO is also on the spectrum but in a way opposite of me that they don’t really have strict rules and schedules to keep their life together like I do, so we learn from each other: I try to give more space to things that cause me anxiety and over all loosen my grip, and they try to create more structure in their life.
Also conscious choices on what to ruminate and what not is sometimes helpful: do I REALLY need to think about this right now?
If I’m full of chaos or anxiety when I go to bed I have a conversation in my head with an imaginary friend that will validate my feelings and experiences and tell me what I need to hear. It gives a different perspective which can be helpful.
So many things yet to understand and the re-learning is just in the beginning, but even so it feels like a big change already! The years of neglecting myself have taken their toll for sure but I hope there’s still hope left.