Hey y’all. I posted a few weeks ago about being discouraged after a recent colonoscopy that showed despite being on oral and suppository mesalamine that I was still showing ulcers in my colon (proctitis). However, at the time of the colonoscopy, the UC hadn’t spread anywhere. So that’s good news!

One thing I did is stopped taking my SSRIs and went through about 3 weeks of withdrawal. This was a planned thing, I know stopping an SSRI can be risky but I was getting withdrawal symptoms after just 12 hours or a missed dose and I didn’t need them anymore for anxiety/depression.

I had also started the Evinature CurQD supplement and my UC symptoms are pretty much all gone. No blood, no mucus, no liquid bowel movements.

But right after I was done withdrawing from the SSRI, this would be three weeks post-colonoscopy, a little more than 3 weeks since starting the CurQD, I thought things might start evening out. There were some rough GI issues withdrawing from the SSRIs but they were short lived and I knew that would happen.

But things didn’t even out.

Instead, I started getting bloated and having a lot of abdominal cramping. The pain was pretty severe, so much so I really considered going to the hospital. My GI PA ordered a CT and I did that. All they found was a slight thickening of the colon wall in the sigmoid, descending, and transverse colon.

So my question now is: I think the UC is under control using the CurQD protocol. But is healing also painful? Like how do the ulcers heal? Do they scab? Is the pain here just part of the healing process? I’d find it hard to believe that within 3 weeks of the colonoscopy that the UC somehow spread so far up my colon almost instantly.

The GI PA also described Bentyl. He thinks I have both UC and IBS-D. So I just started taking that a couple days ago.

I’m just on so many meds now I’m having a hard time keeping track of what is a symptom of the disease and what’s a side effect.

Curious y’all’s experience getting out of a flare and into remission.

  • comfyquaker@lemmy.world
    2·
    2 days ago

    I changed my diet up drastically prior to starting my biologics. it started fine, and then maybe 2 weeks in, absolute hell. fair bit of abdominal pain, bloating, and my UC symptoms continuous. afterwards everything cooled down so to speak and i felt a lot better.

    Perhaps staring your CurQD supplements gave you a similar effect? cant speak to the new findings.

    So maybe? i don’t think the pain i experienced was because of healing but rather withdrawal from not eating all the junk I had used to. Though, I think the diet change attributed to a reduction of UC symptoms and ultimately the best condition i could have been in before starting my biologics which ultimately got me into remission. Weird to say I’m looking forward to my next colonoscopy and see what has changed for the better.

  • DontTreadOnBigfoot@lemmy.world
    2·
    3 days ago

    I had very severe pancolitis, diagnosed as Crohn’s. 99+% of the large intestine and some in the small, so I had a LOT of ulcers. I am now in full remission on infliximab.

    And no, there was no pain associated with the healing. The only sign of the physical healing was that I stopped having blood and mucus, and my blood counts slowly started improving.