• 3 Posts
  • 23 Comments
Joined 1 year ago
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Cake day: June 16th, 2023

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  • Guilvareux@feddit.ukOPtoADHD@lemmy.worldOof…
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    1 year ago

    Without intending to be pinickity, I would just like to say that, long-term studies of stimulant medication show growth in the areas of the brain ADHDers are typically underdeveloped.

    Making no comment on you decision, I just wanted to challenge that it merely covers up the issue. It may very well be that understanding herself and ADHD-educated parents are the only necessary tools (I wouldn’t know - sounds like she’s lucked out). But the medication does actually address (to some extent) aspects of the underlying problem enough to be neurologically measurable.



  • I completely agree that sharing it with other instances is a problem.

    You can bet your behind that Big Tech and governments are harvesting ALL of it as we speak.

    This is super nitpicky, but assuming it exposed even a minute amount of the data that Reddit freely ships to whoever buys it (including governments), I actually think it’s far less likely to be seen. Social media companies are well-known to freely give access to anything law enforcement, governments or advertisers would like. Most if not all, have exposed APIs which allow law enforcement at least to collect almost any data at their leisure. This data is packaged up by the orgs who have the data.

    Scraping Lemmy for this information would require their own solutions, and backends to handle all the data. Here in the UK, our tecnically-inept government famously broke their multi-billion COVID test-and-trace system because the excel spreadsheet they used as a database, ran out of lines…

    Even assuming it’s true that all of these groups have bothered to make their own solutions and bought server space to store the data themselves for a relatively tiny (certainly until very recently), the only data they get is who liked what post/comment.

    That is a small snowflake compared to the iceberg that other social media organizations collect, package and sell. Facebook for example collect enough data that they earn more per user than Netflix.

    Certainly, as Lemmy and ActivityPub gain more traction, this is a privacy hole which deserves some consideration, and should be immediately plugged. But I just don’t think it’s in the same solar system as exposing data to any social media site.


  • Obviously, this isn’t ideal. But this isn’t as damning as some of the other commenters believe.

    The way reddit operates, is that they are “trusted” with all our data. They can (and do), sell any data they like, to whomever they like. They store much more information than simply who upvoted what. They can’t simply allow upvotes with no claimant, they’d have no way of stopping or identifying bots or illegitimate upvotes.

    This system is not ideal, but it’s also not necessarily worse. We’re still operating under that system, the only real difference is, we get to choose who that trusted party is. We get to move instances if the hosters interests become misaligned with our own.

    Ultimately, there needs to be a smart solution to this problem to ensure it’s not abused. We can’t completely remove collection of the data, otherwise upvotes will be meaningless and hijacked by agendas. We can’t simply encrypt the data, if there’s a genuine use for it (which we’ve discussed), who SHOULD be allowed to decrypt it?

    I completely understand the concern, and I share it. But this isn’t an issue so much with Lemmy, it’s an issue with upvotes on distributed social media.

    Edit: Okay, ANY instance admin is where the issue lies. That much I agree with.






  • Guilvareux@feddit.ukOPtoADHD@lemmy.worldOof…
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    1 year ago

    It’s own challenges for sure. Certainly until you find the right dose.

    I can get overstimulated easier and pressured situations that I used to thrive in can become overstimulating instead now. But there may be some crossover with a family history of ASD. Difficult to know what’s medication and what’s medication + me, ya know.


  • Guilvareux@feddit.ukOPtoADHD@lemmy.worldOof…
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    1 year ago

    I’d think of it a bit like this. Doing all your taxes and small print forms is definitely possible without glasses, but it’s blurry, headache-y, and takes a long time. For me medication has been a bit like putting glasses on. Yeah doing taxes still sucks but it’s a bit of a relief from extra ADHD challenges.

    As an Adult, theres a lot of tasks that it helps with. It certainly won’t match your fantasy but it definitely is a game changer.