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Joined 1 year ago
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Cake day: July 23rd, 2023

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  • My wife has EDS inherited from her mother. Doctors recognized it in both of them, but only her mother is eligible for financial support. While my wife doesn’t even get a handicap parking card. Government doctors refuse to recognize it in her.

    EDS is very misunderstood because they have good and bad days, and it doesn’t show externally. So when she has a good day and can walk, she goes outside. Only to be accused of faking it the next day when she can’t get up because they saw her walking.

    If I wasn’t there for her, she’d be on the streets. Yes, this also happens in countries where health care is almost free… but not for her, she is completely abandoned by government docters while she has all the necessary reports from the hospital doctors.







  • Good, doctors should be worried. Because if it isn’t a textbook issue you have, they won’t search any further and tell you with their heads up high “live with it”. And they got it wrong half the time too. Pretty much what AI would do. Characters like dr.House are a myth.

    Nurses should not be worried. Because it is them who take the imaging, put on bandages and clean up.

    I welcome AI if it means shutting up ivory tower doctors.

    All the power to nurses!