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Joined 1 year ago
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Cake day: July 23rd, 2023

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  • My wife has EDS inherited from her mother. Doctors recognized it in both of them, but only her mother is eligible for financial support. While my wife doesn’t even get a handicap parking card. Government doctors refuse to recognize it in her.

    EDS is very misunderstood because they have good and bad days, and it doesn’t show externally. So when she has a good day and can walk, she goes outside. Only to be accused of faking it the next day when she can’t get up because they saw her walking.

    If I wasn’t there for her, she’d be on the streets. Yes, this also happens in countries where health care is almost free… but not for her, she is completely abandoned by government docters while she has all the necessary reports from the hospital doctors.