Yup, thyroid, adrenals, and gonads have been checked, both with blood work and untrasound.
I have dysautonomia due to a brain stem herniation, and temperature regulation is effected by that, but it’s just been so weird that the way this symptom effects me was decades of not feeling the cold, then suddenly now I’m not feeling the heat.
I know which one I’d choose if I got to pick… and it’s the one where I don’t need to go to a wound nurse for frost nip in February.
I was a year round shorts guy, genuinely didn’t feel the cold. Last year I suddenly became a year round thermal stockings, skivee, thermal gloves, jumper and woollen pants guy.
I can’t get warm. It’s like I’m catching up on 30+ years of never feeling the cold by feeling the cold all the time.
I never really understood at what point a language evolves enough to be an entirely new language.
Old English feels so far removed from even middle English, let alone modern English.
We have “new” and “old” to differentiate them, but with how many Latin words alone entered English between Old English and Modern English, It’s something I’ve never found a comprehensive answer to.
I guess, what is it about proto-indo European that we acknowledge as a distinct language from the hundreds of thousands of languages that evolved from it, other than time scale and global impact.
In Australia the biggest brand, and therefore the name we all call them is “zooper dooper”.
Litteraly could not name another brand, I genuinely don’t think I’ve seen a competitor for zooper dooper in Australia (not counting black & gold because that’s not exactly a brand, or squelch, who do the fruit juice version, as it’s a different product).
It’s strange how zooper dooper are in an entirely unique class of frozen product here. Everything else could arguably be called “an icey pole” but zooper dooper is its own thing somehow. (same as sunny boy, that was its own thing, I miss sunny boy!)
Yes and no, if you scambait hard enough your number can eventually be added to a blacklist for larger scam organisations that bought your data for use in multiple scam attempts.
In my experience that has really cut down on the calls.
In 2020 the department of human services accidentally posted my personal phone number on a list of support services for people experiencing housing or food insecurity. This number was then circulated by every major news source in my state. I couldn’t change my number at the time because I had no legal ID (still don’t… Can’t figure out how to get ID without ID, but I have a new number now at least) at first I didn’t really notice the ratio of spam calls to genuine calls for the wrong number (ie, people calling my number because they needed housing/food) . I just remember getting 40+ calls a day at many stages.
But as the actual number for the food relief service was circulated, I eventually stopped getting genuine calls and I was getting 3-5 scam calls every single day.
After a year of scam baiting, I was getting 2 a week.
Now, I’ll do something online that requires sharing my current number, within a few hours I get a scam call because my data has been sold, but I bait the heck out of that first call and I usually don’t receive any further calls which suggest my number was blacklisted by a larger scam organisation, and I won’t be hassled until my data is sold again as a new item.
It’s hard to avoid getting your number on scam lists when the largest health insurance company, and the second largest telecommunications company in my country both had major data breaches where millions of customers identifying information was accessed and sold to scammers…
Food I cook is starting to taste more and more like my mother’s cooking. Moving out of home I always assumed my mums poor cooking was down to technique, boiling the brussel sprouts, steaming the peas until they were grey, water frying everything. As soon as I learned to cook properly it was amazing how much flavour everything had. Letting things brown fully, using oil, not overcooking everything.
But recently, no amount of skill can save the sad veggies sold in store.
It makes the hyperprocessed foods even more appealing when there’s nothing you can affordably do to improve the simple produce and staples. When potatos cost the same as Pringle’s, calorie for calorie (and they do, 
) it’s easy to see why “just eat beans, rice, and in season produce” isn’t helpful advice - yes it’s frugal, but it’s depressing, and not as easy as it used to be. Why waste money on already rotting food that tastes bland when the same money can buy me a more nutrient dense food that lasts longer and tastes better?
I’ve got a few things growing on the 2m concrete slab my landlord calls a back yard, it helps having home grown spring onion, parsley and pea shoots to dress up a dish.
I’m a terrible gardener, I can’t even get mint to take. “grow your own” is thrown around too readily when people complain about produce quality. It’s not always an option, there is a physical skill, a cognitive skill, and resource requirements.
Meditation wasn’t super helpful for me, guided meditation required too much sustained focus and was cognitively fatiguing to stay on track. I have dysphantasia so that doesn’t help when you’re told to picture things or imagine things as part of meditation, because imagining something requires me to talk to myself in my head, which doesn’t feel meditative, it feels too similar to ruminative thought patterns. Doing the “quite wandering mind” style of meditation was risky because I already experience maladaptive daydreaming.
But I discovered “somatic regulation”, which is something I kind of already did instinctively when I was getting really stressed or overwhelmed.
When stressed I’d tap my teeth together in a pattern, drum on my chest, hum, wiggle or do fidgety little things, often not even consciously.
Now that I understand what this does for my emotional regulation, I set time aside every day to consciously and mindfully do things that look and feel absolutely ridiculous. Like lying on my stomach and rhythmically slapping the tiled floor, focusing on the sensations rather than trying to clear my mind, or guide my mind.
I started mid last year, and it’s been the only form of mental health self care that I’ve been able to remain consistent in, and I’ve noticed a drastic decrease in how often I feel overwhelmed, stressed and anxious. I’m also able to identity when I’m starting to get stressed much earlier than I used to, and more quickly identify a way to reduce it. I’ve always struggled to identify emotions in the moment, but I feel like now my mind-body connection is stronger. It’s easier to tell when my headache is because I’m hungry/thirsty vs stressed or tense. Before I used to just guess, try everything and hope something worked, then look back with hindsight thinking “guess that was a hunger headache because relaxing didn’t help but carrot sticks did”. Now I’m more likely to know what I need.
Edit: just realised this post was in the Autism community, lol, I need to learn to read things more thoroughly, I was talking about stimming without saying the word “stimming” because I’m so used to getting flak for that in the NT subs I post in.
This is why they are also tell you the license plate number.
I don’t need to know what a Honda Whatever looks like to know that if the licence plate and my app both say “ABC123”, that’s my uber.
My uber is a white Toyota camry? So helpful, there definitely aren’t 7 of them parked outside the club each waiting for their uber rider and or kidnap victim.
I’m certain you understand, you are intoxicated, departing from the entertainment establishment before it closes, and you are responsible so you take it’s upon yourself to secure safe, sober transport home. The application you use to order the ride informs you that your designated driver will arrive in a “Kia Chevy Juke”. Despite being absolutely incapable of clear thought, you, or another member of your party is trying very hard to ensure you all enter the correct vehicle to avoid potential danger from nefarious individuals. Also, you have chosen to partake in this activity in a cold time of year, and as it is 4 o’clock in the morning, you are all quite cold.
Oh definitely, he knows, but I also know and understand his perspective. For him, masking and unmasking when texting his boss then texting his family is exhausting and incredibly emotionally taxing. While I don’t meet the clinical criteria for an autism diagnosis, I do struggle with a few of the same things my brother and dad struggle with, particularly around processing, emotional regulation, and burn out, so I’ve been in his shoes where I know I’m doing something the hard way, or I know we’d all be happier with another method, but changing the task or changing the routine or process is even harder, even though the process I’d be changing to would be easier and better, initiating that change feels like an insurmountable climb.
Besides, my dad had to try and put up with my hyperlexia when I was growing up - before I had the emotional maturity to understand my dad’s needs, I can’t even imagine how much he suffered from my frustrating communication style being imposed on him. Now he’s older, it’s my turn to suffer 😂 (that is, it’s my turn to let him explore the ways he wants to communicate, even if it’s not what I want.)
Sounds like Dr Gunther von Hagen’s, he invented a the plastination method of tissue preservation that’s used in countless medical and anatomy training schools across the globe.
He had a series on BBC/Chanel 4 as part of his “Body Worlds” exhibits and that’s all over YouTube, as part of promotion for the new technique that let him preserve entire intact body systems. Fascinating stuff if you’re into general anatomical studies, or just body horror
The source of some of his older anatomical specimens is… Controversial
BBC 4 has a bunch of autopsy videos floating around on YouTube. I vaguely remember the one with the blonde doctor from supersize vs superskinny dissecting a smokers lungs and a morbidly obese heart, and an alcoholics liver.
My dad now uses AI to write all his texts to me.
He’s autistic and dyslexic and texting was always a massive struggle for him, so he’d leave voice messages, or just call me, and they’d be rambling and non linear, but it was my dad and his voice, his personality.
A few years ago he’d use dictation to send texts, and it was pretty funny because he hadn’t no way of proof reading them and dictation is never great for people with accents or speech problems… but now he will just use the microphone to ask whatever AI assistant is built into his phone the same rambling question he would have previously just voice messaged me.
And Copilot re-writes his rambling question and spits out a message that sounds like some formal business email. So now there’s an extra level of misinterpretation, an extra level of being removed from communicating with the human being.
I’ve asked my dad if he finds AI easier than just leaving a voice message (because I personally think sending a voice memo is easier) and he says he likes it because it makes him feel like he’s “normal” and can do the things everyone else has always been able to do with ease, even though he knows its not perfect.
I can definitely see the value in AI as an accommodation tool, and it has helped my dad a lot in his professional life where previous accommodation tools haven’t been adequate to “keep up”.
But I do miss hearing my dad, or reading his personality come through in the poorly dictated texts. My brother has gotten really annoyed at dad for this because my brother it’s also autistic and it’s actually harder for him to communicate with dad with an AI middle man, they’ve lived together for almost 30 years and they basically have their own language, so the AI texts my brother gets from my dad drive him nuts, when he and my dad have never had issues communicating.
I’m also worried that it’s effecting the limited literacy skills he does have, he’s getting rusty because he no longer has to try at all most days.
Better than the system being used by the department of human services in Australia. If the servers and service centres are overloaded, you basically just get told “tough shit, try again later, hope you’re not desperately trying to get out of a DV situation or protect an elder from abuse, cause we’re not paying for more servers”
At least with a digital queue system there’s a sliver of hope that you might get through.
I think the reason the idea of a “skill cap” feels instantly incorrect is because there is obviously no point at which any human “stops learning”. There will always be more to learn an more that someone (autistic or not) can learn.
The skill cap applies to specific metrics of measuring skill gain.
A large number of people with “level 3” autism who are non verbal will never learn to communicate verbally as fluently as non-autistic verbal people, even with decades of supportive education. But that doesn’t necessarily mean they have a “communication skill gap”, there’s a lot of communication skills that can and will be developed with the right support. But expecting someone in that situation to “try harder” and “learn to talk” is unrealistic, when the more achievable goal should be “learn to effectively communicate”.
It really depends on the way someone’s autism effects their social skills. Not everyone has the capacity to learn these skills, Autism does create a skill cap for many people.
It’s also a question of involved effort. I was in a form of ABA therapy as a kid and I was capable of learning to identify sarcasm and read social cues, so I did.
But it doesn’t come naturally to me, it requires a level of concentration and conscious processing that I don’t hear non-autistic people discussing. It causes headaches and migraines and after a few days of work, using these skills every minute of the day, I’m exhausted and struggle with basic tasks at home. I don’t have these same issues with exhaustion or conscious processing when I’m with other autistic people (I work in disability programming, I coordinate/admin 3 days a week with mostly neurotypical people, and run programs 1 day a week with mostly neurodivergent people, and there’s a big difference on how much “effort” it takes to understand people in those two environments)
Not saying it’s not worth learning. If you can learn these skills they are incredibly important and at the bare minimum they will keep you safe.
But as a society we need to accept that for a small subset of people with disabilities, these skills are unachievable, and reasonable accommodations will still need to be made, and for a slightly larger subset, accommodations may still need to be made on occasion because while someone may have these skills, they might not have the cognitive capacity to employ these skills 100% of the time.
Disassociation maybe?
I used to think my hearing loss and visual impairment was the reason I got so stressed walking through a car park - I can’t hear cars and I can’t always tell if a slow moving car is indeed moving.
But that made no sense because I have no issues getting around a bus depot and public transport interchange. I’ll be fine navigating the streets with buses, trams, bikes and pedestrians, but as soon as I step into the parking lot I suddenly can’t detect obstacles properly.
My partner pointed out thatI very clearly dissociate when I’m in a car park. I’ve conditioned myself to feel anxious in car parks (from when I was younger before I learned to navigate with my disability, the fear of car parks did not make sense) so now I pre-emptively check out and try to navigate on autopilot, which makes it more dangerous and anxiety inducing, making me dissociate more.
As soon as I realised that I was dissociating and that was the problem, I started working on it and now I have no greater level of disorientation in a car park than anywhere else.
I have a step through frame that you sit upright on. 20-25km/h is my average commuting speed for getting to work and going to the shops. I regularly have to push to 30km/h+ because of motor traffic trying to ride up my ass even though I’m in the designated bike lane. (cars in Australia like driving fast in the bike lanes to avoid the chicanes on the road designed to slow motor traffic for cyclist safety)
If ebikes are disproportionately represented in cycling accidents, then I would argue it’s not the speed, it’s the barrier to entry. People who have never ridden before, people who aren’t physically able to ride a standard bike, these groups make up a significant portion of ebike riders because ebikes are accessible.
Yes, speed will contribute to this, people with limited riding experience being able to ride fast, possibly without the physical fitness required to control a bike at high speed.
The issue then isn’t the speed itself, but rider education and training.
Not too far off, $1AUD (0.60 euros) would be a cheap can of beans (which is often mostly water, even if it’s a 400g can, once you drain the beans, your millage varies by brand) $3 a can is average for name brands that fill the can to the brim.
But when you can buy 500g of dried beans for $3.99, and that will make the equivalent of 8-10 cans of beans, as someone who doesn’t eat meat (and has allergies so can’t eat commercial “mock meats”), I eat at least 2 serves of legumes every single day. Buying cans adds up at that scale even though I’m just one person. So I always buy dry legumes when I can.
I definitely have some cans in the pantry for emergencies though, because they are very convenient.
But I also have some pre-cooked, unseasoned beans and chick peas in the freezer, when I cook up a big pot I always throw a few portions in the freezer. They defrost in less than a minute in the microwave, so I’ll use them before I crack open a can of beans.
As someone chronically Ill, I feel this so hard.
Every minute that I’m not at work I’m dedicating to making sure I’m likely to be well enough for work tomorrow.
I don’t do anything after work without asking “how will this impact my health tomorrow?” and that includes things like not being able to sweep my own floor because I know I need to sweep at work and the nerve damage in my arms won’t let me sweep twice in one day without keeping me up all night in pain, and if I don’t get enough sleep, I’ll get a migraine and won’t be able to physically see anything.
Most of my days off are spent in agony trying to restore myself and desperately trying to reset my house and home life so I can keep up with work, without overdoing it on Sunday and making myself sick for Monday.
So yeah, on the one day a month where I wake up for work and I don’t throw up or almost shit myself, and my heart rate is doing what it’s supposed to do, and I can see and hear and feel my feet… The temptation to “call in healthy”, so I can actually have a day off to enjoy myself for the first time in over a month is really hard to ignore.
I actually did that this week because Wednesday was my birthday, I went to work, it was a “bad workable day” (vs a “good workable day” or a “bad unworkable day”) and Thursday I woke up feeling really good, I only had a 2 hour shift and it was just admin so I took my first sick day in 6 months and used it to do all my linens and towel laundry. It felt like a proper day off because I was healthy enough to get stuff done for myself, without being in pain or having to stop to run to the bathroom or let my heart calm down, or give up on folding because I can’t feel my arms.
I can’t do that every time I want or even need to though. My bank account is really good at forcing me to go to work, healthy, half dead, or heaving. Chronic illness is expensive, and some days trying to keep up with work feels like it costs my health more than not working. but sadly not working is not an option for me, because I’m capable of work, so I must. (and continue to push my gov for universal basic income)
For context as to how working while disabled messes you up. I got hit by a truck on the way to work last year, I got to the office and used their first aid kit to patch myself up. Booked a doctors appointment, told my boss I’d be leaving early, then kept working until my appointment.
My boss was fine with this, and then someone on reddit posted a photo of the crash and my boss saw, they realised when I said “I was hit by a truck” what I meant was “I was hit by a truck”
When asked how I was feeling, and reporting “no different to usual” my boss sent me to the ER because they thought I had a concussion and was acting confused. ER checked me out, dislocated shoulder and wrist, soft tissue damage here and there, but otherwise nothing major or serious or nothing I don’t already deal with on a daily basis. I went back to finish my shift and my boss asked what I was doing working after I’d been hit by a truck.
I feel exactly the same level of pain today as I do every other day. If I take today off because this level of pain is apparently unworkable, it’s a slippery slope, eventually I’m going to have to come back to work despite being in this exact same level of pain. This is my baseline, now I can truly compare it to being hit by a truck.
I used to be on a pension, I wanted to work because I wanted purpose in the neo-liberal hell scape of my society. but my mental health was too shot because of this deep rooted idea that I deserved rest just for being in any level of pain that was out of the ordinary, and subconsciously I would talk myself out of doing anything because I deeply believed I shouldn’t have to.
But I don’t have that luxury, my ordinary will always be “hit by a truck” level, so right now I either learn how to consistently work through it, or drop dead broke and homeless.