• ThirdWorldOrder@lemm.ee
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    2 months ago

    Jesus Christ that’s fucked up. Only 36 too and stopped drinking… and had a willing living donor. What do you do in this situation when they won’t help you? Go down to Mexico?

    • ricecake@sh.itjust.works
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      2 months ago

      Well, stopped drinking when she got the diagnosis, not before, relapsed into drinking while on the transplant list, and as they said in the article there are a lot of criteria for a living donation, and it’s only an option if you otherwise qualify for a donation because of the possibility of rejection requiring an urgent transplant.

      A different article said they were trying to raise funds to get the transplant done at an unspecified European hospital, so “yes”. I think it’s telling that they didn’t go to the US, a north American country, or specify the country.
      It’s worth remembering that the only people who can talk freely are the people who were decided against and are talking about suing.

      No one wanted her to die, but with organ transplants it’s a case where you’re more or less picking who will die. Phrasing it as being punished for bad behavior is unfair to the people who need to decide which people are likely enough to benefit, which isn’t easy.

      • ThirdWorldOrder@lemm.ee
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        2 months ago

        I didn’t catch the part where she relapsed after diagnosis. For fucks sake how much was this lady drinking to get liver failure at 38?

        • ricecake@sh.itjust.works
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          2 months ago

          It actually takes surprisingly little if it’s done consistently and without giving your body time to rest.

          A standard drink has roughly 14g of ethanol in it. People with notable liver damage tend to have a history of a decade or more drinking 30-50 grams a day, or two to three drinks.
          People who drink more than 80g a day for a decade are almost guaranteed to have liver problems (~5-6 drinks).

          Obviously drinking a half gallon a day is worse, but consistent long term drinking is also not great.

          It is essentially a poison that’s only around because it’s easy to make and traditional at this point.

        • jpreston2005@lemmy.world
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          2 months ago

          heavy drinking – a term defined as five or more drinks for males, or over four for females, on one occasion at least once per month in the past year.

          What the article calls heavy drinking, would have been nothing to me when I was an active alcoholic. Towards the end I’d be drinking anywhere from a pint to a fifth of bourbon a day. I was an active alcoholic for over a decade, running from age 23-33. I’m thankful that I was able to sober up, celebrated 5 years sobriety (from alcohol) a few months ago. Saved my life.

          • ThirdWorldOrder@lemm.ee
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            2 months ago

            Congratulations! My wife drinks a ton and has since high school. I make her get blood work done regularly and the worst that happens is inflamed liver.

            She drinks like 3 of those boxes Costco wines a week so at least 2 bottles a day. Sometimes liquor on weekends. She just turned 40

            • jpreston2005@lemmy.world
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              2 months ago

              If I were you I’d try to switch off to smoking weed instead. Much healthier, no hangovers, no adverse side effects, and so much cheaper! A chronically inflamed liver leads to some bad things, and dying from it is not pretty or gentle

              • kelvie@lemmy.ca
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                2 months ago

                Not a chronic weed smoker, but how does weed help? Does it fulfill the same need?

                And isn’t this just trading lung health instead (and throat health, though I imagine alcohol isn’t great for your throat either)

              • ThirdWorldOrder@lemm.ee
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                2 months ago

                I don’t drink more than twice a month. I do have an addiction to sparkling water however.

                Maybe I can get my wife to switch though, I’ll try! Thanks for heads up.

      • TimewornTraveler@lemm.ee
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        2 months ago

        I believe this is FALSE:

        [she] relapsed into drinking while on the transplant list,

        Where does it say this? I reread it 3 times. That’s a huge part of the story and not one you should just make up!

        • ricecake@sh.itjust.works
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          2 months ago

          Not made up, I just read a couple other articles that mentioned it.
          It’s also part of the whole “the only people who can talk freely are the people with an interest in the doctors being wrong”.

          People aren’t turned away because they didn’t exercise or because they work too much or they don’t get enough sleep or they didn’t follow doctor’s orders. So, in Nathan and Amanda’s case, you’re seeing someone being told, ‘You didn’t follow doctor’s orders, so we’re not going to help you. We’re going to let you die’

          As a quote from the other interested party, as well as the “in documents shared with CTV News, notes show […] their decision was based on ‘minimal abstinence outside of hospital.’” is pretty much spelling it out.

          • TimewornTraveler@lemm.ee
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            2 months ago

            ‘minimal abstinence outside of hospital.’”

            I’m not sure why folks seem to think ‘minimal abstinence outside of hospital’ is a smoking gun. That’s pretty much how medical staff should document an alcoholic whose sobriety only began while hospitalized. It means she hasn’t been able to quit drinking!

            • ricecake@sh.itjust.works
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              2 months ago

              In isolation it’s not great, but in conjunction with your own advocate talking about you not following a doctor’s orders? It doesn’t bolster confidence that the individual would follow doctors orders in the future.

              It means she hasn’t been able to quit drinking!

              Yes, that’s exactly the point. It’s quite unlikely her medical troubles started when she was hospitalized.
              A history of not following medical advice casts doubt about a future of following medical advice.

              Yes, addiction is a disease that the individual may lack the ability to control. That doesn’t change that it’s a risk factor for non-compliance that’s absent in others who need the transplant.

              • TimewornTraveler@lemm.ee
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                2 months ago

                whoa wait a minute. I didn’t realize which comment i was replying to. I read three different articles and found NOTHING stating she relapsed.

                I do similar documentation and I can promise you that “minimal abstinence outside the hospital” does NOT mean relapse.

                I’m gonna have to ask to see the citation or ask you to delete your comment for misinfo

    • ngwoo@lemmy.world
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      2 months ago

      Partial transplant from a living donor was not viable for her. It would have immediately failed, leaving her with no liver at all, and then she would have died because she wasn’t eligible for a full transplant. Doctors will not perform a procedure that guarantees death. The article explains this

        • healthetank@lemmy.ca
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          2 months ago

          But doctors say that people with severe liver disease from alcohol use may need more than just a partial living liver donation to thrive.

          “The sicker someone is, the more they benefit from getting an entire liver from a deceased donor, as opposed to part of the liver from a living donor,” said Dr. Saumya Jayakumar, a liver specialist in Edmonton and an Associate Professor in the Faculty of Medicine & Dentistry at the University of Alberta.

          “On the off chance their (living) liver doesn’t work, they urgently get listed for a deceased donor,” said Jayakumar. "We need to make sure that everyone who is a candidate for a living donor is also a candidate for a donor graft as well, " she added.

          Guy you were responding to wasn’t entirely accurate with what the article says, but general idea is there. If the partial liver fails, then they immediately get added to the full liver list, which is why they need to meet the full liver list requirements. Based on how end-stage she was, it sounds like its less likely the partial would be successful.

      • DerisionConsulting@lemmy.ca
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        2 months ago

        It’s taxed the way it is, because the only drug that kills more than booze are cigarettes.

        Those taxes also go to help innocent people who are harmed in crimes that are often related to alcohol, like domestic violence, assault, and auto-incidents, also things like uttering threats and mischief.

        • Nik282000@lemmy.ca
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          2 months ago

          domestic violence, assault, and auto-incidents, also things like uttering threats and mischief.

          Crimes most committed by the police?

          • DerisionConsulting@lemmy.ca
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            2 months ago

            I agree with the general vibe of police are bad, in Winnipeg they recently killed a woman because they were driving off-road in a park at night, but the idea behind “sin taxes” are generally as a deterrent, as well as a way to try to mitigate damage to others.

            I’ve been to places that are “cop bars” unknowingly, so the porcine populace may have have a DV-juice problem.

    • n2burns@lemmy.ca
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      2 months ago

      Jesus Christ that’s fucked up. Only 36 too and stopped drinking…

      From the article:

      Amanda Huska died Aug. 15 after spending six months in an Oakville, Ont. hospital.

      and:

      Huska, he said, stopped drinking as soon as she was diagnosed with Alcohol Liver Disease on March 3

      So that sounds like she was immediately admitted (which implies she was already very sick) and only was sober in the hospital. In my opinion, that doesn’t qualify for “stopped drinking” and unfortunately she didn’t get a chance to prove whether or not she was actually able to stop.

    • Otter@lemmy.caM
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      2 months ago

      I was reading through the article and I think the policy in question is this

      Transplant guidelines in Ontario and much of Canada require patients with ALD to first qualify for a deceased donor liver. If they don’t meet that criteria, they aren’t considered for a living liver transplant, even if one is available.

      Also this

      “The sicker someone is, the more they benefit from getting an entire liver from a deceased donor, as opposed to part of the liver from a living donor,” said Dr. Saumya Jayakumar, a liver specialist in Edmonton and an Associate Professor in the Faculty of Medicine & Dentistry at the University of Alberta.

      “On the off chance their (living) liver doesn’t work, they urgently get listed for a deceased donor,” said Jayakumar. "We need to make sure that everyone who is a candidate for a living donor is also a candidate for a donor graft as well, " she added.

      As for why that is, I’m not familiar. I’ve asked someone else and I’ll edit in more if I learn more

    • johannesvanderwhales@lemmy.world
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      2 months ago

      And for good reason, really. The supply of livers is too small to save everyone who needs them, so they give them to the people most likely to have a successful outcome. Basically every lived given to one person is sentencing another person to death. That’s just reality with supply being what it is.

    • humble peat digger@lemm.ee
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      2 months ago

      Wait, so if someone was ever an alcoholic - they gonna be denied? Even if they stopped drinking for many years?

      • Lumisal@lemmy.world
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        2 months ago

        In most places, if they’ve been clean for 6 - 12 months, they are no longer considered alcoholic in terms of transplantation. Similar to Canada

        • i_love_FFT@lemmy.ml
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          2 months ago

          Notice that they never state she was an alcoholic. They also never atate she was a “high level” alcohol user. Just that she was an alcohol user.

          You can make your own assumptions about her alcohol use, but in general these rules would also excluse a “normal” alcohol user with a congenital liver failure…

      • buddascrayon@lemmy.world
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        2 months ago

        She literally quit when she was told she had a failing liver that could not recover. Just to be clear, there is absolutely no way in hell that she didn’t know she was on the way to killing her liver with her drinking because there are a plethora of signs long before you get to the point where alcohol has destroyed your liver beyond its own ability to repair itself. (Which is incredibly prodigious. The liver is the single most regenerative organ in the human body)

        So forgive me if I’m skeptical that she really would have stopped being an alcoholic after she received a liver transplant.

        IMO this was a tragedy of her own making and the money and effort in transplanting a liver would have been a complete waste. (Even one offered by her SO.) Especially when there is such a deficit of available organs and the surgeons who do the transplanting are needed for patients who aren’t likely to go back on the sauce 6 months later.

        • addictedtochaos@lemm.ee
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          2 months ago

          the pain of a cramping liver is excrutiating. if you deal with that kind of unrelenting never stopping pain und don’t stop drinking, you are addicted for sure.

      • SulaymanF@lemmy.world
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        2 months ago

        Doctor here who has referred patients for transplant. No. You must be six months sober to be eligible for the transplant list. There’s so few livers to go around, they need to be sure the recipient isn’t going to just break the next one.

        It’s rare to suddenly need a liver; they usually take months to fail and this gives the patient and doctor months of notice to try treating the failure first (including lifestyle changes and meds) before getting sick enough to go apply for a transplant.

        • sailingbythelee@lemmy.world
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          2 months ago

          I used to trust HCPs, but I know many of them now and have heard them shit-talk and judge their patients for mental health issues and drug use (among other things). I would NEVER, EVER tell a doctor or nurse about any form of drug or alcohol use now, or any kind of anger issues that could possibly be interpreted as aggressive. Especially not in a hospital where everything gets recorded in an electronic chart and may be used against you in the future. Fuck that.

          • SulaymanF@lemmy.world
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            2 months ago

            I’m sorry you have such a low opinion, maybe you heard someone venting about their job after work?

            You really think lying about your drug use is safe? It’s dangerous to give many types of anesthesia if you’re on drugs or alcohol. We don’t particularly care if you use or not, we don’t tell police or family, you just need to be honest so we can do our job correctly.

        • areyouevenreal@lemm.ee
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          2 months ago

          Their boyfriend was willing to be a living donor for them. So you aren’t talking about a scarce resource here.

  • Ulrich_the_Old@lemmy.ca
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    2 months ago

    If you are going to make alcohol consumption a bar to a liver transplant without making alcohol illegal you should all go fuck yourselves. You had a drink and you should die should not be a thing.

    • LustyArgonianMana@lemmy.world
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      2 months ago

      This isn’t what happened though. She was addicted to alcohol, per her partner, got diagnosed with needing a new liver, she immediately quit alcohol, and they denied her anyway even though quite a bit of time had passed while she was sober. I am unaware if her liver disease was because of the previous regular alcohol use. It wasn’t just 1 drink though.

      Yes, organ donation is messed up. I met a girl dying in hospice once. She needed a new kidney. Genetic stuff, and then when she was 15 she tried to kill herself with Tylenol. She got her first transplant before the suicide attempt. She was denied a second one due to the suicide attempt itself. There are only so many organs in the world. She died in agony in hospice, young and covered in calcium deposits.

      We punish substance use and mental health so harshly in this country. No one deserves the death penalty for previous substance use, especially for alcohol which is ancient af. It’s horrible she was denied when there was a liver already available.

      • Yaztromo@lemmy.world
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        2 months ago

        It’s horrible she was denied when there was a liver already available.

        Any full cadaver liver that could have gone to this woman didn’t get thrown into the garbage — it went to someone else who would have died without it.

        As for the living donor liver her boyfriend offered, even though he was a match her level of liver failure likely meant that the partial liver her boyfriend could have donated wouldn’t have been successful. Living donors still need a liver for themselves, and we each only have one full liver — so the best they could have done is given her half a liver. Her condition was too poor for this to have a likely positive outcome, which was why this was also denied.

        It sucks, but there aren’t enough donor livers for everyone who needs one. The cadaver liver she was denied however would have gone on to save the life of someone else you’re not hearing about in the press — someone else who may have died without it.

        If the unfairness of it all upsets you that much, then make sure you’ve signed your organ donor card, and make sure your family members know and understand your desire to be an organ donor. And encourage the people you know to do the same. This is only a problem because there aren’t enough donor livers for everyone — when you have n livers, at best you can save n lives — and thus having a larger number of donor livers allows for more lives to be saved, with fewer qualifications.

        • LustyArgonianMana@lemmy.world
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          2 months ago

          It’s hard to say if she would have lived or not.

          I think a bigger discussion about medical gatekeeping and bodily autonomy is warranted here

          I have been an organ donor since my first driver’s license

      • repungnant_canary@lemmy.world
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        2 months ago

        From my limited knowledge organ donation criteria are horribly restrictive on a personal scale but unfortunately make sense on the macro scale. Organs are such a scarce resource that as I understand there’s no other option.

        This girl’s death was undoubtedly a tragedy, but as fucked up it’s to say if she lived someone else would probably die in a similar agony. Was she treated fairly - I don’t know, can we make this system better - I unfortunately also don’t know.

        • Saledovil@sh.itjust.works
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          2 months ago

          One easy way would be to make organ donation opt out instead of opt in. As in, if you do nothing, you’re an organ donor if you end up brain-dead, and if you don’t want to, you have to explicitly opt out. Alternatively, we could just say any brain-dead person may have their organs harvested, regardless of what they declared while still alive. After all, you don’t need the organs anymore once you’re brain-dead. (I’m specifying brain-dead, because if you’re completely dead, then the organs are also useless)

          • repungnant_canary@lemmy.world
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            2 months ago

            That would help to some extent with scarcity in opt-in countries. But there are already opt-out countries which still face the same dilemma. Because if you’re even one organ short how do you fairly decide who’s gonna die… Can you even fairly decide about someone’s life and death…

      • CileTheSane@lemmy.ca
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        2 months ago

        We punish substance use and mental health so harshly in this country

        It’s not punishment, any chronic illness will make someone ineligible for an organ transplant. It’s not saying it’s that person’s fault, it’s a situation of “2 people need this organ, which ever you choose the other will die in agony, one is more likely to live twice as long as the other.”

  • ZC3rr0r@lemmy.ca
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    2 months ago

    It’s incredibly sad to hear someone die of a preventable cause this young, but I can also somewhat relate with the people who reviewed her application.

    If a living donor wouldn’t have been sufficient, they’ve now created two patients where they previously had one, and without improving the primary patient’s condition. It makes sense that a donor organ from a deceased donor would be preferable.

    That said, the current requirement for the patient to meet deceased donor standards for transplantation to be eligible to use a willing living donor make no sense. Both situations should have their own unique criteria, given that a living donor situation involves different risks for both the patient and the donor than a deceased donor situation would incur.

    Ultimately this whole situation boils down to a scarcity situation though. If we want to solve this, it will require more people to register themselves as a donor and a review of the eligibility criteria as soon as more donors are available.

      • Nik282000@lemmy.ca
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        2 months ago

        It’s not just acceptable, it’s encouraged by the province to keep people from rage quitting their lives here.

        • piccolo@ani.social
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          2 months ago

          No, the current system is opt in. You have to choose to be a donor. Opt out means you have to choose not to be.

      • QuizzaciousOtter@lemm.ee
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        2 months ago

        Why not? Why do you need the ability to deprive someone of a live saving procedure after you literally died?

        • piccolo@ani.social
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          I dont know. Probably because it risks being abused. The US already has private prisons filled to the brim with trivial felons forced to work in sweat shops… im sure theyll love to sell their organs too after dying from heat stroke.

          • QuizzaciousOtter@lemm.ee
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            2 months ago

            I see, that’s a valid concern. I wonder whether we could try to prevent such abuse by automatically excluding more prone groups like prisoners. It really seems crazy to me how many organs, which could literally save someone’s life, are going to waste.

            • piccolo@ani.social
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              2 months ago

              I think opt out would be sufficient. Right now, its a compilcated to opt in and not many people thinks about it. In my state, the only time you see it, is a small checkbox when you get a drivers license.

              But being opt out everyone is included unless they choose not to, for whatever reason. Which is think is more than fair. Its their body, they should have the right to do whatever they wish, regardless if they arent using it anymore. The amount of people opting out would be a minority, so it shouldn’t really be a concern.

    • Shou@lemmy.world
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      2 months ago

      In my country, everyone is an organ donor unless they specifically opt out. Usually due to religion.

      I’ve been seeing organ transportation ambulances near my city’s hospital from time to time. It’s weird to see, but a good thing.

      • explodicle@sh.itjust.works
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        2 months ago

        There should be no opt out, even for religion. No I do not respect your customs as much as I respect someone else’s life.

        • Shou@lemmy.world
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          2 months ago

          I agree. I think people who choose to opt out for selfish reasons should be placed lower on the list. It’s inmensely hypocritical.

    • Zorque@lemmy.world
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      2 months ago

      Pump make blood go weee

      Liver and kidneys have to filter and sort various chemicals to keep them from poisoning your body.

      Also, dialysis is a thing, it’s just generally external cause of the complexity.

      • breetai@lemmy.world
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        2 months ago

        Artificial kidneys are in the test phases. Not sure when they’ll enter trials but it’s very complicated.

        • SoylentBlake@lemm.ee
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          2 months ago

          I just learned this last week that when someone gets a kidney transplant, doctors don’t remove the old one, they just shove it aside and patch the new one in…and honestly, that’s kind of fucking me up.

    • Floey@lemm.ee
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      2 months ago

      The liver is one of the most complex organs in the human body. It is responsible for a wide spectrum of toxin breakdown and chemical synthesis. The heart only needs to pump blood, though it’s uptime is very impressive. If your liver stops working you won’t die immediately but if your heart stops working your body will be starved of oxygen in mere minutes. Ultimately though what the heart does is mechanical and simple.

  • corsicanguppy@lemmy.ca
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    2 months ago

    How has Polievre not tried to capitalize on this tragedy to pitch his “your bank is a better death panel than the transplant math” plan yet? American healthcare is half his platform!

    • exanime@lemmy.world
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      2 months ago

      He has a platform? Every time I check is just angry “I’m better than Trudeau” statements

  • Nuke_the_whales@lemmy.world
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    Selkirk said she and Allan are both discussing a legal challenge to the liver transplant guidelines for those with alcohol use disorder “with people who have their own living donor.” “It’s not fair and it’s not right, and hopefully we’ll change that policy,” Selkirk said.

    Even if her apartment could donate his own liver, it should still go to a better recipient. If anything he should be donating anyways to honor her and save a life

    • Notyou@sopuli.xyz
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      2 months ago

      Maybe he should, but maybe he is thinking “Fuck them, we tried to participate in the system. We had a living donor to go. What? Oh you have a ‘better’ recipient? Well, guess who doesn’t want to donate to a system that failed my loved one.”

    • DefederateLemmyMl@feddit.nl
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      2 months ago

      Even if her partner could donate his own liver, it should still go to a better recipient

      That’s nonsense, because the partner would not donate his liver if it went to someone else.

      • JasonDJ@lemmy.zip
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        2 months ago

        Right? Like I would donate my liver to my kid, or my spouse, without even questioning it.

        But if the doctor told me they can’t have it (for some reason other than incompatibility), and they died? Fuck them. I’d de-register as an organ donor out of spite.

        • driving_crooner@lemmy.eco.br
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          2 months ago

          Donating an organ is a pretty invasive operation that can have a lot of complications, doctors aren’t only taking the recipient health, but the donor too, in the equation.

          • DefederateLemmyMl@feddit.nl
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            2 months ago

            We’re explicitly talking about a situation where the donor is suitable. So I don’t know what kind of information you’re trying to add here.

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      You (or the committee of doctors) don’t decide who is a better recipient for my goddamn organs. You can make whatever the fuck ethical decision you want when I’m dead, but not until then. And I’ve gotta say, it’s shit like this - treating patients & donors like you know better - that make me not want to be a donor anymore. If I wanna donate my lungs to Hitler because he’s my grandpa and I love him, that’s not something you get to have a decision on.

      • andrewta@lemmy.world
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        2 months ago

        The fact that people are down voting you for saying in essence “my body, my choice”, is ironic for lemmy.

        • AeonFelis@lemmy.world
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          2 months ago

          Not really. All political factions try to sound like they are about principles when in reality they are about tribes.

        • DefederateLemmyMl@feddit.nl
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          2 months ago

          my body, my choice

          It’s a bit more complicated than that with transplants. Should people for example be able to sell their kidney to the highest bidder? That’s also “my body, my choice”. And should doctors be forced to participate in such a scheme?

          A transplant system should consider fairness, equality and possible abuse. Obviously I think it should be possible to donate to a loved one, but we should also be careful not to create a system where the rich get priority, because they can pay more, and where poor people could be financially pressured to give up their bodily integrity by having to sell an organ.

  • Mycatiskai@lemmy.ca
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    2 months ago

    I’m quite torn on this issue, my sister donated her kidneys and liver when she died. On one hand people who need an organ, need an organ but on the other hand deceased persons organs are so rare that they should go to those with liver diseases they have no medical control over before those who are sick from an avoidable disorder.

    I don’t like to think of my sister’s liver going to someone who would abuse it over someone who just happen to have a genetic liver issue. She lived a life too short bringing joy and education to many children, her final act saving others would be soured by someone wasting it.

      • Mycatiskai@lemmy.ca
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        2 months ago

        Some could consider it a mental disorder.

        Compared to an autoimmune disease that attacks organs and glands, I’d think the autoimmune patient should be top of the list. Probably good that I’m not on death panels though.

      • tiredofsametab@fedia.io
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        It is, or at the very least is a symptom of another one. I have all kinds of addiction issues which is why I must be super careful in my life. I am a former alcoholic who used to drink nearly every day from basically after work until I was too tired to keep going. I also have ADHD and possibly ASD (the latter not officially diagnosed as of now). There seems to be some evidence that those can play a role in addiction.

      • n2burns@lemmy.ca
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        I completely agree that alcoholism is a disease, and as with any other disease, we have to look at the survivability if she got the transplant.

        Let’s be honest, while the article tries to be favourable to the patient, you can piece together the facts and see that her odds weren’t good. While she’s been sober since she got the diagnosis, it appears she was immediately hospitalised which tells us she was in very rough shape and has only been sober while in the hospital. Even if she was able to stay sober, it looks like the odds with a partial transplant aren’t great.

  • radicalautonomy@lemmy.world
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    2 months ago

    My cousin was a raging alcoholic. He got clean, but not before he fucked his liver right up. I don’t know if they even allowed him on the liver transplant list or not, but if he was, he was very low on it. He died in early 2015 at the age of 43.

  • yannic@lemmy.ca
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    The provincial governments in charge of our single payor health care system made the conscious decision to keep the liquor marts open while banning in-person sales of tea kettles (and we call ourselves a commonwealth nation!) during a pandemic.

    I think our single payor at least partially did this to themselves.

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      I’m pretty sure people would’ve stormed parliament if you banned alcohol sales.

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    2 months ago

    As an alcoholic, I initially agreed. Don’t waste a liver on me. Then this:

    Even pleas for a living liver transplant, with Allan offering to be her donor, were not entertained.

    What the actual fuck.

    • evulhotdog@lemmy.world
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      It’s not like giving away part of your liver is a zero sum game, now that person is at risk of infection, has lesser liver performance, and for what? Someone who has showed they will just continue to harm themselves, and others (the person they’re getting the liver from,) if you allow it?

      I don’t know any other surgeons who would do that.

      • VirtualOdour@sh.itjust.works
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        If a surgeon refused to let me save the life of the one person in the world i love then they wouldn’t be able to save any more lives after that so add that to your heartless calculations…

        • evulhotdog@lemmy.world
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          There are very few transplant surgeons who would take the risk of a partial liver transplant which they have high likelihood of being a death sentence for the patient (not sure if you read but they need a full liver, from a cadaver, not partial,) and want to willingly throw their name in with another patient to discuss during M&M.

          This is coming directly from familiarity with the procedure, comorbidities, and other factors from a general surgeon at a top 10 hospital in the US.

      • areyouevenreal@lemm.ee
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        Has lesser liver performance? What? Do you understand how a living transplant works? You both regrow a full liver after the procedure, because livers are so regenerative you can make a full one from less than half. This makes no sense to me.

        Also she quit for 5 months after she found out she had liver failure.

        • medgremlin@midwest.social
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          It takes years for a donor’s remaining liver to grow back, and the recipient is unlikely to grow out more of the donated liver depending on comorbidities and severity of illness.

    • pipsqueak1984@lemmy.ca
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      I’d have supported her paying out of pocket to use the live donor that was willing, but not to use my tax money when it’s pretty fucking clear she has no intention of changing.

      It’s the same reason I’m largely against the Liberal’s diabetes funding - ~90% of diabetics are Type 2 (I’m willing to help Type 1’s out because it’s not their fault) and the vast, vast majority of those are from unhealthy lifestyle even if they are genetically predisposed.

      If were going to have a public health system, people should be required to take care of themselves. And no, I’m not talking about the one-off accidents from riskier activities (although I do think people should bear the cost of their own healthcare if it’s the result of criminal activities), I’m taking the problems that occur as a result of abusing your body for years or decades.

      • Hanrahan@slrpnk.net
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        2 months ago

        Thats a dark road to tread.

        An example,

        no alchol consumption is safe, so using your line of thinking you’d need to argue that anyone who partakes of alcohol at any anytime would fall under that line of thinking

        https://www.who.int/europe/news/item/04-01-2023-no-level-of-alcohol-consumption-is-safe-for-our-health

        Processed red meats simailary, especially those treated with nitrites, so those eating bacon, ham etc shouldn’t be entitled to public heath care under your reasoning

        https://www.cancercouncil.com.au/1in3cancers/lifestyle-choices-and-cancer/red-meat-processed-meat-and-cancer/

        Or are those things ok becase you do them ?

        On the upside, now you’ve excluded 95% of the population, public healthcare will be cheap :)

        Contra to most peoples thinking, if you’re concerned about public healthcare costs, you should “encourage” obesiety and smoking, they all die early, most health care coats are associated with healthy people in their old age. See here

        https://www.nytimes.com/2008/02/05/health/05iht-obese.1.9748884.html

        Adults are stupid and greedy, we all are.

      • Greenknight777@lemmy.ca
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        You’ve gotten a lot of downvotes but rather than doing that I want to explain to you why your position here is flawed.

        First think of every lifestyle activity whether it be food, motorcycle riding, music, etc. Now consider that there are some activities that are statistically safer than others.

        If we took your position to the point of being law why would we stop at food lifestyle choices? Why not just any risky lifestyle choices? Eventually you end up with a society where individuals have less choice and freedom and are constantly obligated to live the safest possible lives.

        You and I both know that isn’t a desirable outcome. We should be empowering people to live the lives they choose and encouraging them to be healthy, not punishing them for make the “wrong” choice.

        • pipsqueak1984@lemmy.ca
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          2 months ago

          I attempted to address this but perhaps I wasn’t clear:

          Yes, some activities are risky then others, however many of them have absolutely 0 negative impact on you unless something major happens all at once. In fact, many of them have major health benefits for the vast, vast majority of participants.

          Contrast the above to overeating, chronically eating stuff that’s not good for you (ex. excessive sugar, salt), drinking too much, doing lots of drugs, smoking… that kind of behaviour will basically screw up everyone who partakes given enough time and has no positive health benefits at all.

          You talk about a loss of freedom… I’ve already lost freedom by paying for a bunch of people who purposely fuck themselves up for no tangible benefit to themselves. There is stuff that would be good for me that I literally can’t afford because of the amount of taxes I pay.

          Here’s an idea for your route of encouraging healthy lifestyle rather than removing freedom: include a physician form in my taxes where my doctor attests that I am generally in good shape (given my age) and he has no reason to believe I am doing anything that is a risk factor for chronic cardiovascular or lung diseases, diabetes or related chronic illnesses, and give me a significant tax break for doing so.

          • CileTheSane@lemmy.ca
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            Right now you’re on the internet instead of being physically active, that’s a health risk.

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              Who says I haven’t already gotten enough exercise today?

              You’re aware of the concept of overworking your body, right?

              • CileTheSane@lemmy.ca
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                Who says how much it’s acceptable to eat or drink?

                I don’t care if you’ve gotten enough exercise, you would be healthier if you were walking around the block right now instead of sitting inside on the internet. Since my taxes pay for your medical bills I get to tell you how to live your life, so get walking!

          • Greenknight777@lemmy.ca
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            Consider what you just said can apply to motorcycling or buying a classic car with outdated safety features. There is no tangible health benefit to motorcycling or driving a classic car, it basically “has no positive health benefits at all” (as per your own words) and only increases risk. Show it be banned? What about every other risky hobby? If not, then neither should eating junk food which is measurably less dangerous/risky. Keep in mind that for smoking the overall trends of diminishing smoking habits in younger generations basically highlights the proof that encouraging healthy habits rather than punishing the individual is the correct way to approach this.

            • pipsqueak1984@lemmy.ca
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              2 months ago

              Buying a motorcycle or classic car doesn’t necessarily lead to injury in the same way that overeating and being lazy to the point of becoming a land whale does.

              • Greenknight777@lemmy.ca
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                I suggest you look up just how often motorcycle injuries/deaths happen. What you’re saying only applies if you never get into an accident or fall off the bike ever, in the entire period it is owned (which could be 20-30 years). Something which is incredibly unlikely. From the language you’re using (i.e whale) I’m getting the impression that your position isn’t rational and instead based on a dislike of overweight people. I’ve done what I can here but I don’t think you’re messaging back in good faith and don’t want to entertain the perspective of someone who tries to put others beneath them based on their body and eating habits.

                • pipsqueak1984@lemmy.ca
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                  I’d be willing to bet that the number proportion of motorcycle owners with health problems caused by riding is a hell of a lot lower than the proportion of people who don’t eat right and don’t exercise enough and have health problems linked to that.

                  And no, it’s not just overweight people I don’t like, it’s also people that are sick all the time (like, weak immune coughs and colds type of stuff).

              • CileTheSane@lemmy.ca
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                2 months ago

                Being a judgmental asshole increases your likelihood of being assaulted. I shouldn’t have to pay your medical bills when you get punched in the face by a stranger.

      • GreyEyedGhost@lemmy.ca
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        2 months ago

        So I drink more pop than I should. Why should I have to pay more for my healthcare than my buddy who had a habit of timing running green lights as soon as they turned green. That isn’t illegal, either, yet it’s very risky behavior. It didn’t work out for him just one time, and he nearly died. Why should taxpayers have to pay for him?

        The answer is because the vast majority of us engage in risky behavior, or just have the bad taste of passing on our poor genetics to the next generation, and the social cost for penalizing people for not agreeing with societal norms are too high. This includes drug use, even legal ones like alcohol. Sure, don’t spend limited resources such as donated livers on people who aren’t willing to make the lifestyle changes required to make it worthwhile, because someone else will probably have to die for that to happen. But if we could make new livers and the price was reasonable, I wouldn’t even be against that.

        • pipsqueak1984@lemmy.ca
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          2 months ago

          If your buddy who likes gambling with green lights was convicted of a traffic offence as part of that accident he should have been on the hook for his own healthcare and the healthcare of anyone else he hurt.

          • GreyEyedGhost@lemmy.ca
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            2 months ago

            Way to miss the point. It’s a good thing you don’t engage in any risky behavior, or anything that would have a negative impact on your health. I mean, it’s not like you would be a hypocrite, right?

            • pipsqueak1984@lemmy.ca
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              I never said “Don’t engage in any risky behaviour”. Stuff like cardiovascular and lung diseases and Type 2 Diabetes doesn’t happen over the course of days, weeks, or months, you have to be chronically treating yourself like crap for years to get to those points.

          • GreyEyedGhost@lemmy.ca
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            2 months ago

            What makes you think that I, posting in a Canadian community about a Canadian article, have a contract with a healthcare insurance company?

            • addictedtochaos@lemm.ee
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              2 months ago

              oh, sorry, there was much talk about public health insurance, i Of course don’t have a clue how that works in canada. sorry, my fault. I only focused on public health care, here in germany thats an insurance, i was ignorant.

              • GreyEyedGhost@lemmy.ca
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                Not a problem. It’s essentially rolled into our taxes for the most part in Canada. You may have health insurance on top of that, but that isn’t a guarantee and usually is a top-up of our universal coverage. This usually covers things like drug prescriptions, glasses, and hospital conveniences such as semi-private or private rooms. I agree with the general idea, though, that we as a group pay for everyone who is covered. My original point at the top of this thread is that removing people’s eligibility simply because of risky behavior can be very tricky and likely harmful to society.

      • voluble@lemmy.ca
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        If were going to have a public health system, people should be required to take care of themselves

        On the face of it, this sounds sensible. But, thinking more deeply, who should decide the required amount of care a person ought to take? Ideas about what it means to ‘take care of yourself’ are varied. And consider that some citizens of this country are simply unable to take the same personal health decisions that others have the privilege to take without a second thought.

        What you’re talking about here isn’t a public system. A healthcare system that only serves certain chosen people is not public in any meaningful sense.

        A public healthcare system is imperfect on the whole, but on average, when funded and administered properly, is structured to apportion care based on need, instead of the profit motive. I think that’s worthwhile, and the right thing for a society to do from a moral standpoint.

        • addictedtochaos@lemm.ee
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          no one bothers that it is THE PEOPLE that pay for their health insurance, not the state.

          the state made insurance mandatory, thats the only thing it is guilty of.

      • ChexMax@lemmy.world
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        2 months ago

        Until there is a diet that has long term success for a majority of its users I don’t think this mindset is healthy or realistic.

        “According to the latest weight-loss research, 95% of dieters end up regaining the weight they lost within two years. Calorie-restricting diets are often successful at helping people lose weight, but they’re very unsuccessful at helping people maintain that weight loss.” source

      • CommanderCloon@lemmy.ml
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        2 months ago

        No. A partial liver transplant wasn’t viable for someone this sick, so when the partial transplant failed, they would have to resort to a full transplant from a dead donor. But she wasn’t eligible, so a partial transplant was just a death sentence.

    • CommanderCloon@lemmy.ml
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      A partial liver transplant wasn’t viable for someone this sick, so when the partial transplant failed, they would have to resort to a full transplant from a dead donor, or she would die in operation.

      Since she wasn’t eligible, a partial transplant was just a death sentence.

      • Ava@beehaw.org
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        2 months ago

        Liver failure is terminal. She was invariably going to die without the transplant. She wanted to receive the donation, her donor wanted to donate. If the success rate for a living transplant is zero that’s one thing, but that’s not being claimed here since she wasn’t eligible for procedural reasons.

      • areyouevenreal@lemm.ee
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        They said it was viable in the early stages, and with a decent success rate. Just not the success rate they wanted, and for some daft reasons you need to be eligible for a full transplant from a dead patient to get a partial transplant from a living donor. Makes no sense.

      • weew@lemmy.ca
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        2 months ago

        That would be nice if we had an unlimited supply of livers to transplant. Give everyone a chance.

        Unfortunately I’d still rather give whatever liver we have on hand to someone guaranteed not to wreck it immediately, because giving her a chance means taking away someone else’s.

        • JamesTBagg@lemmy.world
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          No, not in this case, they weren’t taking away someone else’s chance. But you didn’t read the article. Her boyfriend was a match and wanted to donate part of his liver. Donar A wanted to give to recipient B, there was no recipient C losing out. It was a closed loop.

          “No amount of determination from the (partner) could bend the decision,” said the physician. “There was no process for a second review or appeal. Just a harsh finality … goodbye.”

          She many have not even been the drunkard you all are assuming she was. If you go out once a month, and have 3 or 4 beers, you’re not eligible for a liver transplant. That’s ridiculous. You may not drink the other 30 days of the month, but that one Saturday ruined it for you; you die.

          A life was forfeit, because some bean counters in white coats -probably not teetotalers themselves- deemed her not worthy. Even though it cost more to let her die,

          Using the most recent data from the Canadian Institute for Health Information on hospital bed costs (2016), Huska’s time at the Oakville hospital likely cost over $450,000 - ($3,592 per day for ICU care) with an additional 61 days in a ward bed which likely cost about $1,200 a day

          A liver transplant in Ontario is pegged at about $71,000 to $100,000 in Ontario based on data from 2019.

          • exanime@lemmy.world
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            That is because her boyfriend could only give her a partial transplant (he cannot donate his whole liver) and the doctors did not think it would work as her liver was too far gone to recover with a partial transplant

            The rest of your comment is so far from reality or logic, I’m not going to bother addressing it

          • LustyArgonianMana@lemmy.world
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            2 months ago

            Her partner is the one saying she had an alcohol substance use issue. It’s not “assumed” she was a drunkard, he stated it. I agree she should have been given the liver- she quit alcohol, she had a donor. We shouldn’t punish people with alcohol use issues by killing them.

            • CileTheSane@lemmy.ca
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              The liver wasn’t thrown away, it was given to someone else. The liver still saved a life, unfortunately it wasn’t hers.

              Unless you’re talking about the boyfriend’s liver, in which case the doctor determined her condition would not survive a partial transplant, and the attempt would just kill her sooner.

              • LustyArgonianMana@lemmy.world
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                I was talking about the general disturbing nature of determining organ transplants, yes I know re: the live donation from her bf

                • CileTheSane@lemmy.ca
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                  2 months ago

                  So again: The liver wasn’t thrown away, it was given to someone else. The liver still saved a life, unfortunately it wasn’t hers.

                  Imagine being the person denied a liver because they gave it to someone with a chronic alcohol abuse problem to “give them another chance”.

          • weew@lemmy.ca
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            Cutting out someone’s liver to transplant isn’t easy nor risk free. You are risking death to have a low probability of saving someone. It doesn’t matter if they are volunteers.

      • exanime@lemmy.world
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        I completely disagree. People should be able to make mistakes.

        You are allowed to make mistakes… What you are not allowed to do is skip the consequences

        It’s not like you can pick a liver at Walmart and give it a try. That liver could save someone else, giving it to an alcoholic is likely to only buy her a tad more time untill she relapsed

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        Medical notes suggest she started drinking in her late teens and had tried – unsuccessfully – to quit. After periods of sobriety, she returned to alcohol, which could increase the risk of continued use after the transplant.

        Allen says Huska registered for an addiction program early on in her hospital stay to stop drinking after she’s discharged. Hospital records also say she suffers from anxiety.

        From the first article CTV made about this, linked in in the first sentence they posted. Seems like we need to actually fund mental health care in this country or something, because she’s obviously been struggling for a while. You can see how the board would weigh previous failed attempts to quit against her.

    • theluckyone@lemmy.world
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      Did you bother to read the article? Her partner was a match, and could have donated a portion of their liver to her, if approved, as opposed to a donated liver.

      Judge someone all you want for their previous life choices, but the decision referenced in this case should have been between the two of them and their doctor.

      • TimewornTraveler@lemm.ee
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        Yes, I read the article three times over, trying to chase down false info someone posted in here. His offer is irrelevant. The prognosis was not good enough for him to donate. They only included it in the article for the melodrama. It’s nothing more than an “I would die for her!” moment. Well, I’m glad the medical board did not condone assisting him with suicide.

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        Did you bother to read the article?

        Did you? Her liver was so far gone, doctors did lot believe a partial transplant would work

        • theluckyone@lemmy.world
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          Second paragraph in: 'However, documents show the Alcohol Liver Disease (ALD) team at UHN rejected her in part because of “minimal abstinence outside of hospital.” ’

          The article quotes Dr. Jayakumar making a general statement regarding alcohol diseased livers, but the University Health Network declined to comment on Amanda’s specific case outside offering their (patronizing) condolences.

          Feel free to quote the article and back up your statement.

          • exanime@lemmy.world
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            “minimal abstinence outside of hospital.”

            This means she kept on drinking while not hospitalized

            The rest is standard boilerplate, they can’t speak about her detailed case in public

            • theluckyone@lemmy.world
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              I’m sorry, maybe I’m just daft this week, but I missed the concept “the doctors believed her liver is so far gone, a partial would lot [sic] work” in that.

              I quote: “Huska, he said, stopped drinking as soon as she was diagnosed with Alcohol Liver Disease on March 3 and had also registered for an alcohol cessation program to begin once she was discharged.” So where does the article state she kept drinking while waiting for the transplant?

              • exanime@lemmy.world
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                2 months ago

                I’m sorry, maybe I’m just daft this week, but I missed the concept “the doctors believed her liver is so far gone, a partial would lot [sic] work” in that.

                This was posted like 5 times and I assumed it was the same article… I’ll find the link to the original one where they detailed this. In any case, she was not eligible because she was likely to go back to drinking and ruin the new liver…

                So where does the article state she kept drinking while waiting for the transplant?

                I never said that… what the article says is that she was an alcoholic since late teens and was never able to stop. She literally only stopped drinking after she found out she was going to die, and that was only like 3 months. She tried to quit before but never succeeded… that tells you she was a super high risk of relapsing

                • theluckyone@lemmy.world
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                  2 months ago

                  “This means she kept drinking while out of the hospital”, which directly contradicts the statement by the boyfriend saying she stopped drinking.

                  Everything else is like, your opinion, man.